The Sickle Cell Struggle: Advocacy, Unity, and the Power of Community Collaboration
Sickle cell patients can be anywhere, but are there effective community-based strategies to help with psychosocial challenges? Dr. Titilope Fasipe and Jemela Williams share their perspectives.
Hope in the Face of Sickle Cell: Embracing Life Amidst Uncertainty
Pediatric sickle cell patients may encounter psychosocial barriers, but how can healthcare providers improve their support during this time? Dr. Titilope Fasipe discusses challenges and how to aid patients.
Beyond the ER: Innovative Approaches to Sickle Cell Pain Management
What sickle cell interventions have shown success in improving pain management and frequency of emergency care? Dr. Titilope Fasipe discusses pain issues and pain management strategies.
Do Elevated Bilirubin Levels Lead to Hemolytic Anemia Complications?
Can elevated bilirubin usually lead to hemolytic anemia complications? Medical laboratory scientist Dr. Kyle Riding explains how elevated bilirubin levels may occur and potential complications.
How Can Sickle Cell Providers Advocate for Equitable Diagnostics?
Maya Bloomberg shares how providers can assist with raising sickle cell education and awareness, screening recommendations, and increasing patient self-advocacy.
Impact of Artificial Intelligence on Sickle Cell Tests
Maya Bloomberg shares how AI may impact sickle cell tests in the screening, diagnosis, and treatment of patients.
Preeclampsia and BIPOC Pregnancy: Advocating for Yourself
Awareness must be increased about preeclampsia, a critical medical issue during and sometimes after pregnancy. Here’s a look at preeclampsia and potential risks to BIPOC and underserved patient pregnancy.
How Do Sickle Cell Disease and APOL1 Impact FSGS?
Sickle cell disease is listed in some research as a cause of focal segmental glomerulosclerosis (FSGS), and APOL1 kidney disease treatments are under research. Here’s a look at FSGS and the APOL1 gene and how they relate to SCD and other conditions.
Sickle Cell Disease Treatment Access and Resources Around the World
Sickle cell disease (SCD) care is not always easy to locate, and we at DHH want to continue our efforts working toward health equity for SCD patients. Here’s a look at sickle cell disease resources outside the U.S. along with a research update.
Sickle Cell Disease in AYA Patients, Reproductive and Sexual Care
Sexual and reproductive health (SRH) concerns can be top of mind for some female AYA sickle cell disease patients. What do these concerns of these patients show? Here’s a look at the results of a recent sickle cell disease survey.
Overview of Sickle Cell Treatment Landscape
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg provide an update on current treatments, research study results, and treatment improvements currently in development.
Avoiding and Identifying Sickle Cell Pain Crisis Triggers
Sickle cell disease advocate and care partner Carla Lewis shares things that have triggered pain crisis for her son and actions she took to help him avoid pain crisis over the years.
Mother Shares Progress of Son With Sickle Cell Disease
Sickle cell disease care partner Carla Lewis shares details about her son’s journey including what they encountered with support, helpful treatments, and how treatments have evolved over the years – while Maya Bloomberg shares advice for families with sickle cell trait.
How Can Sickle Cell Warriors and Families Advocate for Lower Cost Therapies?
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help reduce the cost of sickle cell disease treatments.
Understanding Insurance for Sickle Cell Care
Sickle cell disease patient advocate Carla Lewis, hematology nurse practitioner Maya Bloomberg, and Dr. Marwan Shaikh explain resources patients and care partners can utilize to take advantage of financial assistance programs and Medicaid and how to optimize financial assistance resources.
What Are Some Challenges of Finding a Cure for Sickle Cell Disease?
Dr. Marwan Shaikh and Maya Bloomberg explain obstacles for patients in sickle cell disease care, challenges to researchers in finding and refining cures, and how patients and others can help improve the possibilities of cures.
Lost in Transition, Optimizing Sickle Cell Disease Care
As part of ongoing efforts to expand sickle cell disease knowledge and to reduce health inequities, DHH hosted its first Sickle Cell Health Hub Huddle with sickle cell disease experts.
Do Sickle Cell Pain Crises Increase or Decrease With Age?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis, share challenges that young adult SCD patients may encounter with their care and offer advice for how patients can advocate for their best care.
What Health Issues Are Associated With Sickle Cell Disease?
Maya Bloomberg explains problems that can develop during pain episodes that sickle cell disease patients and their care providers should be aware of.
Are There Studies on Natural Remedies and Sickle Cell Disease?
Dr. Seethal Jacob explains results of a pre-clinical study on the use of plant extracts versus hydroxyurea in sickling of the blood and how studies could move forward for additional treatment options.