Lost in Transition, Optimizing Sickle Cell Disease Care
As part of ongoing efforts to expand sickle cell disease knowledge and to reduce health inequities, DHH hosted its first Sickle Cell Health Hub Huddle with sickle cell disease experts.
How Is Sickle Cell Research Using Gene Editing?
Maya Bloomberg defines gene editing versus gene therapy and explains gene editing research that is examining treatment advances for sickle cell patients.
Does Standard of Care Change for Adult Sickle Cell Warriors?
Dr. Marwan Shaikh and Maya Bloomberg explain the treatment that has been used as the sickle cell gold standard of care, newer treatment options, and an online resource for finding the latest SCD research information.
Questions to Ask When Transitioning to Adult Sickle Cell Care
Dr. Marwan Shaikh and Maya Bloomberg offer advice on questions to ask providers, online resources for locating sickle cell care, which specialists are trained in SCD, and the latest treatments to ensure your specialist is aware of.
Do Sickle Cell Pain Crises Increase or Decrease With Age?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis, share challenges that young adult SCD patients may encounter with their care and offer advice for how patients can advocate for their best care.
What Health Issues Are Associated With Sickle Cell Disease?
Maya Bloomberg explains problems that can develop during pain episodes that sickle cell disease patients and their care providers should be aware of.
How Can Sickle Cell Warriors Smoothly Transition to Adult Care?
Maya Bloomberg shares care issues to be on the alert for and key concepts to discuss with pediatric sickle cell disease patients before they transition to adult care.